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Patients’ Perspectives on Applications of Artificial Intelligence, Personalised Medicine and Non-inferiority Trials in Heart-Related Diseases

Welcome to our survey!

Thank you for taking time out of your day to help us understand patient perspectives on artificial intelligence, personalised medicine, and non-inferiority trials.  Don't worry if these concepts seem complex right now. More detailed information about the survey will be shared with you in the following sections. Your input is crucial in helping us understand how patients like yourself think about these topics.

How does participation impact you?

There are no risks associated with participating in this study. Please note that this initial section concerns your agreement to participate in the survey and how we handle your personal data. It outlines the data protection and privacy aspects of the survey. The completion of the survey takes about 25-30 minutes. Keep in mind that you can interrupt the survey at any time and continue later.

Data Protection

Your participation is voluntary, and you may withdraw at any time without consequences. The survey ensures confidentiality, collecting no direct identifiers. Data will be securely stored, anonymized, and used solely for research. Results may be published while maintaining anonymity. By participating, you consent to data processing per General Data Protection Regulations (GDPR). Please review the full Data Consent Form below before proceeding.

Thank you for participating and sharing your valuable insights!

There are 37 questions in this survey.
This survey is anonymous.

The record of your survey responses does not contain any identifying information about you, unless a specific survey question explicitly asked for it.

If you used an identifying access code to access this survey, please rest assured that this code will not be stored together with your responses. It is managed in a separate database and will only be updated to indicate whether you did (or did not) complete this survey. There is no way of matching identification access codes with survey responses.

Privacy policy

I understand that my participation is voluntary, and I have the right to withdraw at any time without providing a reason. Withdrawing from the survey will not have any negative consequences for me.

I acknowledge that the survey will be conducted in a way that ensures confidentiality. While no direct personal identifiers (such as names or contact details) will be collected, some sociodemographic data may be gathered. Any data that could indirectly identify participants will be processed and stored securely and anonymized before analysis.

I understand that the information provided will be used solely for research purposes and will not be shared with any third parties. The results of this survey may be used for academic or scientific publications, but my identity will remain confidential.

Your data will be securely stored and pseudonymized during analysis to ensure confidentiality. All personal data will be deleted no later than three months after the research findings are finalized. In accordance with GDPR regulations, anonymized data may be retained for scientific research.. Participants have the right to access, rectify, delete, restrict processing, object to processing, and request data portability, as per Articles 15–21 GDPR. If you wish to exercise these rights, please contact the research team at any time.

Processing of the gathered data during this study will be lawful and remain confidential within the limits established by the EU General Data Protection Regulation (GDPR) if you give consent to the processing of your data for the purpose described above in accordance with Article 6(1)(a) GDPR. Health-related data is processed based on Article 9(2)(a) GDPR.

For general inquiries about the study, please contact the research team. For concerns about data protection rights or complaints, you may directly contact the Data Protection Officer or the Bavarian Data Protection Agency: Data Protection Officer of the University of Bayreuth, Jonas Holoubek, datenschutz@uni-bayreuth.de; The Bavarian Data Protection Agency, Promenade 27, 91522 Ansbach, Germany.

How to contact us: PROFID-Project@uni-bayreuth.de
Please do not hesitate to reach out to us in your native language or English.


Responsible Scientists (University of Bayreuth, Germany)
Project Leaders Survey Study: Professor Dr. mult. Eckhard Nagel, Professor Dr. Michael Lauerer
Operative Scientific Lead: Georg Lindinger 
Researchers: Nicolas Schiermeier, Mona Khattab, Maximilian Dichtl

 
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